there are many things that you don’t see…
You don’t see the millions of tears I have shed,
or the way my heart breaks each time my pain prevents me from
doing all the things that most take for granted.
You don’t see the many times I have had to cancel on my friends,
or eat my meals in bed.
When you see me smile,
you don’t see the intense pain that flows through my body,
every minute of every day -
the copious handfuls of pills I have taken,
or the way my pain breaks my Mom’s heart.
You don’t see the helplessness my Dad feels, or
the sad resignation my son has so maturely made
on days that I just can’t play with him the way he’d like me to….
You don’t see the midnight tears, and how my love wipes them away -
he hides his anger well… never angry at me but loathing the pain he cannot take away.
When you look at me you don’t see
how much courage it has taken me to get out of bed that day,
or how hard it is for me to make dinner for my family some nights,
or do the laundry,
and sneak in some errands before my body starts yelling for me
to stop.
You don’t see my freedom, or lack thereof…
the many times I’ve been disappointed,
the many times I’ve felt like I have let my family and friends down.
With that said, you also don’t see
how grateful I am,
to survive each day.
This is only a glance into a life with an Invisible Illness.
Some take life at face value,
those living with and
surviving
Chronic Pain
cannot.
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If no pain is no gain, I should be right up there with all of you BUT we are not up there, some of us are stuck in the mire and mud wondering if and when this will all end and seem like a bad dream!
I am trying hard to keep the faith but admit it is not easy, in fact these days I have no faith at all. I’ve been poked prodded, looked at and had two surgeries, all with month’s and even years waits in between, for what? To find that my shoulder, elbow, wrist and hand pain is even worse. “They” say it is a neck problem, coulda fooled me.
It all started in 2002 and continues, I’m on the last hope now, Gabapentin with increased doses till I reach the max. So far no good.
AJL
[...] What you don’t see… National Fibro Awareness Day » [...]
This post brought tears to my eyes. I’ve suffered with fibro since 1997, now it includes lupus and lymes. Thank you for the awesome post, I’ve shared this on facebook as well!
Wonderful words.
mo
I wanted to let you know about my charity event for National Fibromyalgia Day May 12,2012. Just make a purchase at http://www.glitzeeglee.com and 50% of all proceeds will go to fibrocoalition.org. I’ve had fibromyalgia for 7 years. I highly recommend you visit this charity’s website. They have helped a lot of people find the root cause of their fibromyalgia. They publish a magazine with great tips and the latest research.
very nice poem .
absolute beauty .