For the past week I have had INSANE nerve pain all over my body, and it is just not wanting to let up. I normally have nerve pain in my hands and feet every day, but this pain I’ve been in is different. I can feel it in every inch of my body… It is searing, burning, red-hot electric pain… It is almost impossible for me to describe..
I thought for a few moments when I first woke up this morning that the neuralgia had decided to take a hike, and I was free and clear… I stirred, opened one eye, and checked in with myself…. Migraine? Almost gone…. Leg pain? Not as bad as it has been… My hands? On fire, but they normally are… Feet? yep, they are on fire too, but maybe it will wear off as the day goes on…
In the past few hours the nerve pain is back, and it is enough to completely take my breath away. There are so many layers of pain I experience daily – Skeletal Pain, Ligament Pain, Muscular Pain, Myofascial Pain – and now nerve pain… It sometimes feels like it is TOO MUCH! I often say to my honey, “If it wasn’t for my nerve pain, I’d be much better”, or “My myofascial pain isn’t so bad today, but my ligaments are sure giving me a hard time!”… Just when one area lightens up, it seems like my body then overcompensates, and starts screaming at me from a different direction….. FRUSTRATING!! the past few weeks though I am being hit from all directions.
I HONESTLY try to stop and listen to my body when it starts screaming at me… I try to listen to the subtle cues when I need to add something to my management plan, or when I find that something isn’t working as well as it normally does. But I just cannot figure this one out?!? I wonder if my nervous system is trying to tell me something that I am just not paying attention to? What am I not getting here?
I have had less than 4 hours of sleep every night this past month, My meds are nowhere NEAR controlling my pain, I broke out into a bizarre case of shingles a few weeks ago, and now I have this agonizing nerve pain that is so much more intense that it normally is….. If my body is trying to tell me something, I wish it would just S-P-E-L-L I-T O-U-T for me!! I am trying to be as gentle with myself as I can.. I am getting back to basics and concentrating on Self-Care… I am taking my meds as they are prescribed to a ‘T”… I don’t think I am ‘over doing it’, if anything I am frustrated because I have set boundaries so I don’t over do anything, and it is STILL not helping… I miss being active!! I miss little things like sitting on the couch with my honey!! The past few days he has been ‘visiting’ me in the bedroom, because I am just not getting the kind of support I need from the couch, and it hurts to sit on it… A times I sit with my palms up in the air, almost as if I was drying my nails, because my hands are on FIRE, and just having them touch my legs is enough to send me over the edge… That is CRAZY!! It feels as if I was dipped, like a corn dog, into a vat of bubbling oil… Does that make sense?
We were invited to some friends of ours for a fondue dinner on this past Saturday, and I didn’t think I was going to be able to go. I spent ALL day resting so I would have enough energy to sustain myself in a different environment for a few hours. It was SOOOO nice to feel like a social creature again! I ended up monopolizing ALL of the conversation, because I seldom get the chance to BE social! OOPS! LOL! We stayed out until 11-ish, and then came home. I delayed taking my meds by 2 hours so I could have a glass of wine with dinner – and PAID the price ALL Saturday night and all of yesterday…. I rocked myself back and forth for 3 hours when I got home before I could sleep…. Those 2 hours cost me 2 days….
Today I am going to try to go for a walk with my son after school, and get this body of mine moving a little… kind of like a test-drive, to see how it responds ;) We have a lot of errands that need to be done in the next few days, and I want to be able to do all of them.. My honey has the next 2 days off, and I do NOT want to spend those days in bed!!!
I just don’t understand where all of this nerve pain is coming from….
And I can’t help but to think that I am missing something… It isn’t the normal neuralgia that has become part of my flaring process.
Do any of you suffer from Neuralgia? If so, what do you do to manage it?
Hugs and love to all of you!