10. You can’t be in that much pain
(this one usually comes up when loved ones find out how much medication you have to take to function, and is usually proceeded with an eye roll, and followed by some generalization on addiction)
9. Stop being lazy and get a job
(Ummm ya….. little do people know that it takes a great deal MORE energy to fight pain everyday than it does to sit at a desk for 8 hours….. If I got paid for my full-time job, I’d be RICH!)
8. You just want attention
(That is why we do whatever is in our power to HIDE what we go through….. This is never the attention we wanted. It is maddening to lose your identity and to become an “illness” instead of a “person”, and that is exactly how we feel when our illness becomes the spotlight.)
7. Your illness is caused by stress
(What in life doesn’t cause stress? Which came first, the chicken or the egg?)
6. No pain. . . no gain!
(That might be applicable to weight lifting, getting a tattoo, or child birth. But all of pain results in a pay off… the pain ends and you get to celebrate the result…. All we get to look forward to…. is….. more pain)
5. It’s all in your head
(If that was the case, a lobotomy would be a successful treatment for MANY MANY illnesses! Where do I sign up for one?)
4. If you just got out of the house…
(OHHHH, well thank you for your enlightened perspective! If I knew that 4 years ago I could have prevented ALL of this! Fresh air is the CURE!!!)
3. You’re so lucky to get to stay in bed all day.
( Pardon my french…. F$@&! …….)
2. Just pray harder
(hard to do when you have lost all faith…. And no God isn’t punishing me for something nasty I must have done in a previous life)
1. BUT YOU LOOK SO GOOD!!!
(THANKS! It took me 3 hours to get out of bed, 1 hour soaking in a hot bath, 3 pills, 2 hours waiting for the medication to take effect, 2 hours doing my hair and make-up to cover up the physical effects of getting on average 2-3 hours of sleep a night, and then 2 more pills before I left the house…. but THANKS for letting me know how good I look! I guess all my hard work today paid off!)
Reprinted with permission of Lisa Copen, Copyright 2007, National Invisible Chronic Illness Awareness Week, http://www.invisibleillness.com
*my commentary in brackets is my own personal opinion, and has nothing to do with the National Invisible Awareness Week website